Testing positive for hereditary breast and ovarian cancer would be hard for any woman to bear, yet alone handle. “Living With Genetic Test Results for Hereditary Breast and Ovarian Cancer” by Journal of Nursing Scholarship gives an insight as of how a group of woman with a BRCA1 or BRCA2 mutation cope over many years after genetic testing.
Between the years of 2002 and 2003, 29 women who tested for Hereditary Breast and Ovarian Cancer (HBOC) or Huntington disease completed interviews and agreed to do another interview later.
Within the 29 participants includes 20 people who tested for HBOC and 9 people who tested for Huntington disease. The 20 individuals that were at risk for HBOC consisted of two groups, people that received a cancer diagnosis and ones who did not. (Note: the 9 individuals are included in this study because it is a grounded theory study, which was created to examine the social process by focusing on understandings and actions of all participants.)
Based on the interviews that were done, the results from interview number one were different from interview number two.
For example, women were asked about their choices that they made after their genetic test. In interview number one, the women were unsure of their choices and how they would affect them later in life. In interview number two, the women found themselves changing their lifestyles by changing their diet and exercise habits. Overall, the results showed that most women were uncertain about their results and how to incorporate it into their everyday lives during interview number one. When interview two came around the women were more confident about their lives and how to cope with their results.
In this article, the Journal of Nursing Scholarship does a great job in holding a great sense of understanding patients with HBOC and how they become accustomed to those results in their everyday lives. Many stories are shared throughout this reading and those stories give readers a real taste of what these people go through. For instance, a woman that tested positive for BRCA shared her story about living a long life based off her encounters that she passed: “I celebrated 50 last year and my mom didn’t so I keep reaching milestones that she didn’t see. I am going to celebrate my 25th anniversary next year and that is going to be something my mom never did…you know I really feel like yeah I am going to see my grandkids, I am going to be around for a while (280)”.
With this statement, women like her have hope and even though she still has this illness running through her veins she keeps on going. Along with this amazing story, lies in what is recorded in the long-term adaption phase table. The living with choices concept showed that women were being “proactive in planning to lead a normal life by keeping the threatened illness in perspective and keeping up to date with genetic and relevant medical information (281)”. This finding supports the thesis stated in this article, which was living with a disease-related mutation is a never ending fight with balancing a normal life along with caring the risk. The audience targeted for this specific article are people living with this mutation but also others that want to learn more about the topic and the issues that the ones that do have this mutation go through daily.
Hamilton, Rebekah. “Living With Genetic Test Results for Hereditary Breast and Ovarian Cancer.” N. pag. Print.