1.)The Odones showed scientific method by first they researched all they could about the disease. They read all the available studies on the topic, and even read beyond ALD-specific studies to learn about other experiments and studies on similar topics that might help them understand the issue. Then they came up with a hypothesis, using an oil on Lorenzo by feeding him it to see if it would reduce the fats in his blood. They charted his blood levels before and after they gave him the oil to check his progress. Their conclusion was Lorenzo’s oil was working.
4.)Lorenzo’s oil is a treatment consisted of oleic acid and erucic acid, prepared from olive oil and rapeseed oil. This treatment is given to males who have ALD. The treatment works like a kitchen sink; lorenzo’s oil added the unsaturated fats that lorenzo’s nerves needed. lorenzo’s body wouldn’t produce them itself, so they needed an outside source-oleic acid. By not having Lorenzo eat the fats his body produced more, like how you plug a sink up the water will just keep filling up. The oil created something like a second drain for Lorenzo.
6.) The medical community resisted the Odone’s treatment ideas because they had not been thoroughly tested on a large scale yet. they didn’t want the Odones to give people false hope until they know for sure if it worked on everyone and what the side effects were. Also they were professionals that did not want amateurs telling them what to do. The Parent support group resisted because they had faith in their doctors and did not want to give parents a false hope that there was a cure.
8.)The family’s courage and persistence did inspire me because they found out their kid had a disease that was unknown and untreatable that their kid was going to die slowly from within the next years. But instead of just giving up and spending time with their kid for the last few years they fought for his life by researching all they could testing out everything they knew and not letting doctors or professionals tell them they cannot do that or they cannot do this because it was not approved, they ignored them and still went on with their courage to keep Lorenzo alive.
12.) Support groups are there to give each other ideas and to be there for other family’s because they are going through usually the same thing as everyone else, giving family’s support for each other. Support groups affected the Odones by giving them the idea that they are not going to sit here like everyone else and wait for a cure that will probably not be found out for a long time, they decided they were not going to sit there and cope in a support group they were going to go work on a cure themselves.
14.) Erucic acid is monounsaturated omega 9 fatty acid. This can be found in rapeseed, mustard seed, and wallflower seed. This acid is not soluble in water. It is used chemically to make many different things; lubricants, cosmetics, nylon and polyester. Consuming large amounts of this acid have been linked back to causing heart disease.
Courtney from Study Moose
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